These drugs are taking their toll! Kayla is very pale, listless and tired. Yesterday I tried to get her interested in arts & crafts, and for the first time ever, she said no.
Today I have to give her the weekly antibiotics even though these kept her blood counts down for three weeks in a row. Because her counts were low they had me stop giving her the antibiotic. One missed weekend and her counts went up to 2800. I am so bummed that I have to give her the antibiotic and the result is her feeling more beat up. A plus from the low counts is that the antibiotics went from being administered three days a week reducing to two days a week. This is how they will be administered for the rest of her treatment. Yay, one less day is excellent.
We are going to take Kayla to a Chinese Doctor who is a trained medical doctor as well as trained in traditional Chinese medicine. I’d try anything to make her road through cancer easier, ANYTHING!
When I spoke to Doctor S., today, to try and get approval to see the Chinese doctor, she voiced her concern over needles and increased risk of infection. I let her know that I did not think Kayla would go for more needles anyway and would not push her to do that. Interestingly Dr. S, then asked me why do you do all of this stuff? “Well if someone told me to hang crystals in the window at a certain time, and make sure Kayla lays on the bed with the rays of the sun hitting her body once they have passed through the crystal, do you think I would do it? Hell yes, sounds crazy but I feel that I have to take measures to help Kayla get through this, whatever it takes. The treatment is very hard and the soldier has to be supported by whatever means necessary.” The doctor looked at me with surprise and understanding. We agreed no needles and she gave me her approval to go to the Chinese doctor. Honestly, I think I won her respect that day. Too many parents of patients just leave everything to the medical team. They are no proactive in general with regards to the health of their child and laying all responsibility with the medical team. In reality it does not work that way. They would feel relief and help by having parents proactive on many levels. It was very noticeable that my husband and I were not the norm. We were actually an oddity. All of us that are very proactive stick out. That is sad.
Before we left the house I gave Kayla 100 mgs of CoQ10 and I’d swear she looked and felt better almost immediately. Kayla’s oncologist approved the COQ10 because I copied information from the book Comprehensive Cancer Care by James Gordon, M.D., and Sharon Curtin. Doctor Gordon, (author of Comprehensive Cancer Care), recommends COQ10 for cancer patients and gives data from studies showing COQ10 had remarkable results.
Another parent gave me some good tips for cancer, i.e., if you are in the hospital and the chemo won’t clear, this means you can’t leave. She said that fruit juices of any kind help to flush the chemo from the patients body. Interesting. She also advised that pickles worked wonders to alleviate mouth sore pain. Just nibbling on any kind of pickle helps. Who would have thought of that? We ended up having a whole conversation about this. I just love getting tips from cancer veterans. They are like being given precious jewels.