Kayla gets surgery today for the medi-port to be placed into her chest. This will get rid of the I.V.’s in her hand which are quite painful when getting medications or blood. The veins burn from the medications and the blood is cold which causes the vein to throb. The Medi-Port has a plastic lining that goes into the vein for what looks to be 8 inches. This protects the vein from any burning. We had two screaming incidents with the IV today. Thank god that will be over soon. They decided to place a permanent cast on her leg. The man who did it was great and made a cast for Kayla’s stuffed dog.
I signed the paperwork for Kayla to be part of a clinical trial. The nurse said the trial is studying how to mitigate side effects of the chemo drugs.
Surgery went fine. She is very sore. The photo above is a picture after the surgery. Kayla is getting chemo and her eye’s are red from that.
Had a long talk with one of the doctors and was told that the first year is very rough with highs and lows depending upon the chemo received. The second year and a half is once monthly chemo and steroids for one week. I just cried. It is difficult to comprehend that we will be doing treatments for a two and a half years.
Tuesday January 8th, 2008. Kayla is now yellow with purple circles under her eyes. She slept most of the day. In the afternoon I took her to the play room and she could not stand to play hockey. She was too weak. Not being able to play depressed her terribly. Kayla also found out that she will not be able to go to school for a minimum of six months. This made her cry pretty hard. Some days life just sucks and that is just the way it is.
I spent time with physical therapy to try and learn how to move Kayla with the cast and get her in and out of the car. Then onto doctors and family services. I now have to pick Kayla up and move her which is not any easy feat. I weigh 120 and am 5’ 4”, Kayla is 64 pounds and is 4’ 1”. I’m essentially moving half my weight and she gets sore spots on her body that hurt her. Quite a drill to get this right.