Tag - Prevacid

Correct Carpet Cleaning
Insurance and Pain Management

Correct Carpet Cleaning

Thursday May 1st, 2008

The only item that has not been thoroughly cleaned in our house is the carpet in Kayla’s room. As you know cleanliness is a very high priority. Unfortunately carpets are very unhygienic, harboring all sorts of fungi, bacteria, dust, mites, and who knows what else. Finally I am going to attack the carpet and get it thoroughly clean.

Her room is not large, probably 12 x 11. I decided that I wanted to do the carpet because a hired company will not go over the carpet repeatedly like I will.  Plus, there’s a way to rent a carpet cleaning machine and get your carpets super clean. I use an enzyme cleaner that is natural with no added soaps or fragrance and made specifically for carpets. I use that with distilled white vinegar and water. Soaps and all that other stuff are not good because they leave residues on carpet fibers. Fragrances and chemicals also leave residues that are not needed, nor are they healthy. Instead I like to use white distilled vinegar mixed into the container of water. Vinegar is a natural disinfectant with the pH helping to keep colors in the carpet bright. Used as a rinse in laundry it will revive dull fabric.  Enzymes break down different types of dirt, releasing them from carpet fibers. That the three major cleaners, water, white vinegar, and enzymes. Pretty simple. Enzymes are a cap full or as otherwise directed on container. Vinegar should be at least a full cup to one tank of water. Here is a link to a natural enzyme cleaner that has hundreds of good reviews.

When I clean the carpet, repeatedly going over an area. The water that gets sucked back up into the machine will get dirtier and dirtier. I dump it out and add clean water, vinegar and enzyme cleaner and continue cleaning. This is repeated over and over in one section at a time, until the water coming into the machine is and looks as clean as water from your faucet. Then you move onto the next section and repeat the same repetitions, section by section until the carpet is thoroughly cleaned.  It took me all afternoon to get the carpet completely clean as described. The difference was beautiful. The carpet looked as if it was just installed.

Seeing the totally clear water gave me peace of mind.

My next project of the day is to try and figure out some of the prescriptions and how to administer them so that Kayla is not experiencing such stomach distress.

I had to wait until later in the day to go to our pharmacy and speak to the pharmacist about Prevacid and steroids. We are still having major problems and I need professional help. His directions were as follows; on an empty stomach take the Prevacid. Wait one hour, eat food and make sure some dairy is consumed, and then take the steroids. We shall see if this helps.

It is great going to the local drug store and getting free advice. The best time to go is late at night when they are not busy and then the pharmacist will spend a lot of time explaining things. Our CVS pharmacy is almost around the corner from us and the pharmacist has been so very nice to me. Its been such a blessing I cannot tell you.  If you are in a similar situation check out your local pharmacy and talk to the pharmacist. You could have a hidden jewel right in your neighborhood who is willing to help.




Insurance and Pain Management

Friday February 8th, 2008

Kayla is 4 foot 1 and weighs about 66 pounds.  I am 5 foot 5 and weight about 120, so you can imagine how difficult it is to carry her.  Yet, this is required because she cannot move on her own.  What is really hard is lifting her from the floor. I sound like a power lifter at a competition.  Jeeze the stuff we do. I lift weights every night in our garage to be able to keep lifting her and moving her.

Yesterday, when we were leaving the clinic Kayla did not want to wear her hat.  We had spoken about this and she has to wear a hat when we go out due to the sun.  Yesterday, it was cloudy, so Kayla asks to take off her hat outside.  I tell her about her being in the wheelchair and bald and how this can scare people.  She gives me a look like “scary? give me a break!” I told her okay, go ahead and scare them all who cares.  She tore her hat off with a flourish and was beaming the whole time.  It is these moments of time that are so precious.

I tried to get a Hoyle lift for Kayla.  This is an apparatus that has a winch and is used to move people.  Bill and I thought this could be used when lifting Kayla from the floor.  Turns out it is too wide for our hallway so we nixed the whole idea.

We watched Harry Potter together in our bedroom.  Kayla was so happy that we were having a “family movie” together.

Insurance does not want to pay for the Prevacid because they only allow 1 pill a day and Kayla takes two.  The nurse at the clinic is trying to help us out on this.  In the meantime Bill bought some and found out they cost $10.00 a pill. These pharmaceutical companies are just criminal. I do not understand why the costs are so high? In other countries these same medications are one quarter of the USA price!

This new cast seems much heavier than the previous one.  I called the orthopedic clinic and to see if we could try and get a lighter cast.  Hers is the standard cast.  They did not think it a good idea and then the person on the phone pointed out the pain I would be putting her through to change the cast.  That was good advice so I nixed this idea too.

Saturday,  February 9th, 2008 Pain Management

Good day.  Kayla did her exercises in bed twice, watched movies, etc.  The pain is bad at night and Kayla is up at 11:30, 2:30 am and 5:00 am.  I called the clinic during the day, and the on call doctor said that pain has to be managed.  In other words do not let the pain start.  If the pain goes away and then comes back it is much harder to handle.  She then directed me to give the morphine every four hours even if Kayla is not exhibiting pain symptoms.  This is correct management of pain.  Who knew?  Now that we are all so fried, I wish I had known this before.

Monday February 11th, 2008 Consolidation 

The first phase of treatment is called Induction.  We have finished Induction and begin Consolidation. Today is day 1 of consolidation.

Today the nurse had trouble accessing Kayla’s port.  There were a couple of attempts and Kayla was crying.  I was suddenly dizzy as if I would pass out.  I had to sit down and take breaths.  This kind of thing has never happened to me before. I like to try and sound normal but the fact is that the stress of cancer and treatment are enormous. I take vitamins, try to sleep, work out almost everyday, and all of these things help but the stress is still bad.

Then we get stupid mistakes like this one and one wonders how they don’t just rip someones head off! This is going to sound really retarded but the script for the morphine said 2 ML.  Somehow when the prescription was filled the written amount was not understood and we were directed by the pharmacist to give Kayla literally drops instead of ml’s.  Now I understand why Kayla has been having such a hard time. What I learned from this is to get the doctor to read you the script so that you can make sure what is written is understood at the other end. But also, in the least you will have directions straight from the horses mouth so even if written wrong you have the correct information!

Dr. S. wants to X-ray Kayla’s back because she is saying that the pain she is in is not normal.  The X-rays came back with something on the 5th lumbar and now they want to do an MRI tomorrow.  We will go home and then come back three days in a row for the next phase of chemo.

Tuesday, February 12th, 2008.  We are admitted to the hospital.  The MRi is done while Kayla is sedated.  Once back to our room we ask if we can just stay in the hospital instead of going back and forth because of Kayla’s back.  Getting in and out of my van is brutal with Kayla’s bad back. The doctor agrees.  What a relief! 

Kayla’s skin is starting to peel on her face and hands.  The nurses gave us a greasy cream but it is hard to rub in because Kayla still has sores spots all over the place.  Other than the peeling, Kayla is looking and feeling better because we do not have to move her.  I think she just needed time to let her back heal.  Our main focus is to keep Kayla laughing.  This is from the book Comprehensive Cancer Care by James S. Gordon and Sharon Curtin.  This book is by far the best book on cancer, better than anything I have read so far.  I highly recommend this book!


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